Our Story April 15th of 2022, our family was given the most devastating news about our daughter Janiyah. Janiyah was diagnosed with a serious heart condition called Coarctation of the Aorta. Coarctation of the aorta is a congenital heart defect, which occurs when the aorta is narrowed, cutting off blood circulation.

 

Janiyah, at the time was 3 months old when she was flown to Ochsner's Childrens Hospital in New Orleans, Louisiana to undergo heart surgery to repair the Coarctation. Due to the intensity of her surgery, she was in the Pediatric Intensive Care Unit for three weeks, and in the hospital for nearly one month. We are thankful for the amazing care provided to our daughter during her hospitalization, which has led, and encouraged us to want to educate ourselves, and others on Coarctation of the Aorta. We have started a Foundation that will educate other parents and support of what this rare heart condition is.

 

The Janiyah Strong Foundation was established to help conquer congenital heart defects, by helping educate, and raise awareness for congenital heart disease symptoms in newborn babies. The Janiyah Strong Foundation believe if the symptoms of congenital heart disease in babies are known this will help families be aware and can be diagnosed sooner to avoid lifelong heart damage.

 

 "This is our Greatest Testimony "